The announcer makes a small acknowledgement to the hundreds of people in attendance at the fireworks display to highlight our presence “hello to the cheapskates on the hill”
We have a great local fireworks display. I think it sells out every year, the mulled wine is brewing, with beer on tap for the adults, sweet shops for the kids and lots of fantastic bright flashing toys you come to expect at these events. The fireworks are amazing and the bonfire is enormous, what is there not to enjoy?
Looking at it another way, it is a sensory bonanza! Unfortunately, sensory overload for Bojangles. That’s right, due to Bojangles having quite profound autism (for some reason I am trying to avoid the word severe, as it is often in the eyes of the beholder and labels don’t always help, but he does face severe challenges coping with everyday life and requires 24hr care), such an event is almost impossible for our family to attend and certainly to enjoy.
We don’t wish his siblings to avoid such occasions, as they are enjoyable and we want them to be able to participate and enjoy, so one of us takes them to a similar event the week before.
Now, in slight contradiction, it has to be said Bojangles loves fireworks. It appears, almost in the way, Vicki (mum) might enjoy a horror film. Whereby, it’s difficult to watch and scary, but strangely fascinating and enjoyable at the same time. There is pleasure and a mild horror at the same time. Bojangles bounces and flaps his arms in rapid motion and shouts unintelligible noises, with volume set at MAX. We know there is pleasurable excitement there and so we try our very best to find a solution.
However, all the other ingredients mentioned above are simply too much for him to process. So yes, we are the family on the hill and we would love to join you, but unfortunately can’t.
We all have our story and we shouldn’t be so quick to judge at times. Taking time to consider someone else’s view takes time and effort, but ultimately, might lead to a greater reward, understanding!
Also, it has to be said, if people can’t afford it, should we really be passing judgment so casually? The parents have found a solution within their means to please their children. If you don’t like it look the other way.
There isn’t an area designated for people in our situation (we wish there were), so, announcer, see you next year. Sadly, for you, we are not easily deterred! We fight these mini battles everyday. Parents. Autism. Life!
Thanks for reading.
Co-Founder at Treezy
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